I’ve taken agency in the treatment of my bone cancer (osteosarcoma in the T5 vertebrae of the upper spine). After I’ve ran out of standard of care treatment options and there were no trials available for me I’ve started doing: maximum diagnostics, created new treatments, started doing treatments in parallel, and scaling this for others.
Elliot Hershberg wrote a great and extensive article about my...
This narrative presents a compelling case of patient agency in the face of systemic limitations in cancer care. The strongest version of this story is one of resilience and innovation—a patient taking control when traditional pathways fail, leveraging data transparency, and attempting to scale solutions for others. The emphasis on public data and collaborative ventures aligns with broader movements toward open science and patient-led healthcare.
However, the pattern scan reveals potential tensio...